How Much Longer Do We Have Left?
My son is dying slowly and has been since he was born
Published in
4 min readDec 5, 2023
One of my sons is terminally ill with a very rare genetic disease. One day his organs are going to shut down one at a time, and he will die. The best we can do after this process begins is to make him as comfortable as we can, and try to manage his pain.
